Post MOHS surgery x3- 5 days later

 

 

I have had so many people checking in on me over the last few days, I just wanted to say thank you so much. I am so grateful to have so many friends and family members who have taken the time to call or text, or order my family dinner, drop of gifts and goodies, bring me drinks or offer to go get me more pain meds when the ones prescribed to me just weren’t cutting it!

I thought I would update everyone real quick as to how it’s going! First off, I drove today! That was a pretty big deal, and probably just a little too soon. While, I’m not really in as much pain, I’m still babying the incision on my leg, it’s probably at the biggest risk of the stitches busting or becoming infected. It also seems that if I’m on it too much, my ankle and foot begin swelling…so for now, I’m still on the couch. Luckily I work from home and have plenty to keep me busy!

We changed all of the bandages on Sunday…even though I have pictures and I was there and knew full and well what was happening, it is still a shock to look in the mirror and see.

First was my head as this was the bandage that was bugging me the most, the tape was stuck in my hairline, so of course I lost more hair that I didn’t have to spare…I’m TRYING to let it grow again, but it seems like it’s just going to stay short. Anyway, overall it didn’t look too bad, and if I try to find a positive from it, it’s kind of like a mini botox or face lift or something….on one side of my forehead….wonder if I can get insurance to cover treatment for the other side? The incision site really never bothered me too terribly, unless I was laughing, yawning, eating, talking….ok, so I guess it did bother me, but I can assure you that the headaches were WAY worse. I don’t know if it was from all the numbing medicine or the tugging and pulling or both maybe, but I am talking full blown migraines. EVERYTHING

was getting to me, the light, noise, everything…and I was already cranky and tired…so it wasn’t good. 

In comparison, this was a much longer incision than my last MOHS on my forehead, 2 years ago….and interestingly it runs right into that first scar. This time my doctor chose to run my stitches in a line on my head rather than vertically like the previous doctor had, I’m interested to see how it heals and if it scars bad?

Why do I look so angry???

My leg was next, I was so scared to unwrap it, but it actually wasn’t as bad as I had feared, just have to remember to keep taking it very slow!

I know you’re probably looking at that and thinking I must be crazy, but really, I’m most concerned with that spot right in the middle opening up! There is a big indention that she warned me about, but I can live with that, the alternative was cutting a longer incision, down through the top of my foot. Um nope, indention is fine! The bruising wasn’t too bad when we checked this one on Sunday. It’s a bit more sore today, so I’m thinking, it’s probably beginning to bruise more.

Last was my chest, I don’t know why or what happened, but that tape would not budge. It had became one with my skin and did you know that the skin that’s kind of under your arm is the worst place in the world to have tape stuck to? Just don’t stick it there. Trust me. After 30 minutes of Kelsey taking a little off, waiting for me to stop screaming, then taking a little off…etc…OH and I almost forgot to mention the stitch that had somehow managed to weave itself into the tape…yeah, it’s a good thing Kelsey saw it before she ripped it off, that would not have been a pleasant moment.

Ok, there’s no sugar coating this one, it looks bad. It looks awful. The lighting is not good, but it’s yellow, and blue, and a little black, maybe brown…purple and did I mention red? And it hurts. And it’s swollen, it looks like I’m growing some weird thing off the side of my chest. And my poor skin is being pulled and tugged in ways it just wasn’t meant to. And one more thing I would like to address…because maybe someone will come up with some really cool answer to this…how on earth am I supposed to wear a bra?! And yes, I need to wear a bra…one because I was blessed in that area, and two because of the gravitational pull of the earth and kids, well lets just say my skin is getting even more abuse from the tightness and whatever. It’s awful, I can only walk around holding myself up for so long. I spent hours last night looking online for a post surgery bra. All I could find were ones for breast augmentation. Ugh. I don’t need that! I even looked into things like shoulder surgery, there were a few recommendations like strapless bras and camis, but again…that blessing I mentioned and strapless bras are of the devil. So, this morning I found a very old, very stretched out, cotton bra from Victorias Secret vintage 1990 and that is what is working. I’m not sure how long it’s going to last before it gives out though, it has seen better days. So if anyone has any good ideas, please let me know because I’m at a loss and I still have over a week before the stitches get to come out!

Anyway, that’s how I am. I’m so ready to get past this bump in the road and move on, but I think it’s going to take a little longer than I originally hoped! I will update you all again soon!

 

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Deja Vu

As most everyone knows, I have been battling skin cancer for quite a few years now.  In my early 20’s I had my first basal cell carcinoma removed off my back.  I also went through, laser treatments, freezing spots, trying various creams, including a chemotherapy based medication, and also participated in a photodynamic treatment at MD Anderson.  3 years ago, I had MOHS surgery on my face, to remove a spot from my nose and from my upper lip.  I blogged and documented the entire procedure here with the goal of educating other people who may be facing the same situation.  I also wanted to bring attention to the dangers of tanning beds and how important it is to protect your skin.  I was featured on MD Andersons webpage and even had Good Morning America feature me in a piece they aired on skin cancer.  I started an airbrush tanning business and constantly posted about recognizing skin cancer signs, using sunscreen, staying out of tanning beds…ect.  I stayed on top of my spots, I went to MD Anderson and stood BUTT NAKED in front of one of my closest friends and 3 doctors and had my body scrutinized from top to bottom, only to learn I had 22 lesions, and even questioned as to whether or not I had ever lived near a radiation plant.  I treated my spots with Tazorac, hoping to see them disappear, a few did but for the most part, it definitely wasn’t enough.  Which leads me to where I am today…

I had a particular lesion on my right shoulder.  It had been there for some time.  Maybe 2 years, possibly 3.  It started out small and red, and eventually grew much larger and became angry, scabbed and never really healing.  I often stood in front of my closet staring at the cute tanks and sleeveless tops that I couldn’t wear, I was so self conscious of the disfiguring growth that was beginning to get worse and worse.  Finally one day I realized that I could no longer put off what I had been dreading doing since my last MOHS experience.  I located a new doctor, this time at the Skin Surgery Clinic in The Woodlands, we met and agreed it was time to start “cleaning” me up as he said.  I made an appointment to have a mini face lift, um, I mean 3 basal cells removed from my forehead for the end of March and went on my way, thinking we could deal with my shoulder and chest and arms and back and lower legs later…oh how wrong I was.

This is what my shoulder looked like this past week, and this was on a good day….IMG_1965

For the most part, it stayed flaky, scabby and sore…it itched like crazy and I felt it all through my shoulder, which was a little worrisome.  My doctor and I decided that it was time to go ahead and get this one off.  He was able to fit me in his schedule and I was arrived at his office yesterday at 1pm, fully anticipating an easy, one cut, clean lines and stitch and go.  I think I was in denial.

A brief description of how MOHS surgery works.

The Mohs technique consists of meticulously removing cancerous tissue one layer at a time. After removal, the specimen’s surface area is examined under a microscope. If there are any cancer cells seen at the outer edges of the specimen, more of the surrounding tissue is removed and the process is repeated until the sample’s margins are examined and come up OK.

If, on the other hand, no cancerous cells are found on the outer edges of the tissue, only a small wound is left. This technique eliminates the guesswork from determining tumor margins, and is less likely than other surgical techniques to damage healthy skin that surrounds the lesions. Its precision is especially valuable for recurrent or aggressive skin cancers, and for high-risk lesions (such as those near a facial nerve). It also boasts the highest reported cure rate and lowest recurrence rate for basal and squamous cell cancers.

After, removing the first piece, which was the entire tumor including the surrounding the margins, I was left with an open wound about the size of a small egg.

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The procedure itself took about 10 minutes, once again, it wasn’t painful (I had been thoroughly numbed with Lidocaine first) but there were some uncomfortable parts, tugging, pulling the feeling and sound of the cutting and the worse part the cauterizing, nothing is more disturbing than smelling your own flesh burning.  I will never be ok with that!  They then took the sample to the lab where it was studied for clean margins.  After about an hour the results were in…he didn’t get it all, and would have to make a second cut.  So once again, more numbing, more slicing, although this was a much smaller piece.  More waiting and then the results, he didn’t get it all.  Third round, more numbing, more slicing, more waiting…and then the results, he didn’t get it all.  At this point he sat down to discuss options.  The cancer had spread.  He described it as miniscule, hair follicle size tumors that were spreading like seedlings throughout the skin on my shoulder.  My options were to leave the last spot and close, possibly with a lateral incision, OR go back for another, slightly larger slice and try to get the rest.  This would result in a more difficult closing technique, leaving me with a larger “Y” shaped incision.  Of course, I just wanted it all gone…FOREVER.  So back under the knife for the fourth time of the day.  This was the wound after he removed the larger portion.

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At this point, the office was closed and the nurse, the doctor and I were the only ones left.  We joked and talked, keeping my mind off of the severity of this MOHS procedure.  The sample was taken to the lab and this time, finally, came back with clean margins!  All of the cancer was gone! Now came the hard part, how to close this up.  My doctor is a perfectionist, he promised and I fully believe that he was going to be meticulous in his stitching and his goal is a hairline scar, however, a lot of that will depend on how easy I take it on the use of my arm.  My right arm. The one I use everyday, for everything.  This is definitely going to be a challenge over the next 2 weeks.  14 days in stitches, lots of soreness today and lack of sleep as I don’t really know HOW to sleep.  Overall, it’s not a bad incision, the stitches were the worse part.  There isn’t a lot skin on my shoulders, imagine pulling a pair of shoelaces as tight as you can and then imagine pulling them even tighter, that is what it felt like as he tried put me back together.

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The moral of this story of course is take care of yourself, love your skin, KNOW your skin and don’t be like me, if you have a suspicious spot, just go get it taken care of.  I put this off for way too long and paid the price.  I’m fairly certain that my doctor and I are going to become great buds, we will definitely be seeing a lot of each other over the next few months as we rid my body, the best we can of the basal and squamous cell skin cancer that is trying to take over.  I’ve got news though, I won’t be beat, it may suck and it may not be easy or pretty, but I won’t give up until I have won.  So if you are facing MOHS or fighting the same fight, just remember to keep moving forward.  Kick it now!  And if you know someone who is still using tanning beds, stick this blog in their face! Show them these pictures!  Show them my previous experience, scare the mess out of them…because we all need to really love and take care of the skin that we are in.